We had an awesome weekend. Joe's sister and brother-in-law came down from ND for the weekend and stayed at a hotel with a pool. The girls were in heaven!! They swam Sat and Sun and still didn't want to get out on Sun night to eat. Jeanne and Gary even went to school to have lunch with Kate (Jenna had a picnic and parents weren't allowed) on Monday. Kate came in for lunch, zoomed right past me and gave Gary a hug. Now I know what Joe feels like :) There was even some excitement! Saturday at the pool, Joe fished a little 1 or 2year old out of the deep end and saved her from drowning. She had wandered out of her hotel room and stepped right into the pool. Joe saw it happen, ran over and grabbed her, and pulled her out. The pool was so busy, no one had even noticed the little girl. Then it turns out, he's done this BEFORE! Back in the late 80's he fished a little kid about the same age out of a lake. There were other people there, but they thought the girl was bobbing along. Joe had been parking a boat trailer, realized she was drowning, ran past the other people, jumped in the lake and pulled her out. It's fairly ironic that he's saved more kids than some lifeguards, and he can't swim. One kid would be a hero, but two earns him Superhero status!!
Summer is supposed to be starting, but it barely got to 60 degrees yesterday. Today it will be all the way up to a whopping 64 degrees. Today is also the last day of school. We're all excited about having the summer to play (although I'm a tad nostalgic about my loss of freedom). We're going to start by having sleep overs tonight. That way we can begin the summer by being tired and cranky tomorrow! Hopefully they'll have enough fun tonight that tomorrow will be a nice peaceful day. If all else fails we can go to a matinee.
Tuesday, June 9, 2009
Thursday, June 4, 2009
No Chemo
Hurray!! No chemo for the summer!! I'll get another scan in July and agreed to go in if I start feeling crappy or develop other symptoms, but since that's not going to happen NO CHEMO for the summer! My tumors aren't getting worse, they aren't getting better, they must be trying to figure out how to get out gracefully. The Dr. and I disagreed on whether the last round of chemo did any good. He claims that since I didn't have any progression, it must have been the chemo. I claim that since there hasn't been any progression since the Sept scan, it must not have been the chemo. There is no way of knowing for sure. Except, I'm right.
The company that tests the tumors against chemos needs fresh or frozen tissue. Mine is packed away in something like formaldehyde and wouldn't work. The doc didn't think he could get a surgeon to remove the one on my hip just for testing, so I have to check and see if they would be able to run their tests with whatever they could get from a needle biopsy. I thought the argument that the illness is gone only from the spots where the tumors were removed surgically, should warrant the removal of at least one more, but he didn't buy it. He still wants me on a clinical trial instead of another round of chemo, we'll talk more as the summer winds down.
For now it's explore Minnesota time. I'd like to take the girls camping (once), but since neither Joe or I are campers, we'll have to see if that actually gets done. I'm sure there will be adventures, both in the backyard and upstate. Here's hoping that everyone has a fabulous, safe, summer!
The company that tests the tumors against chemos needs fresh or frozen tissue. Mine is packed away in something like formaldehyde and wouldn't work. The doc didn't think he could get a surgeon to remove the one on my hip just for testing, so I have to check and see if they would be able to run their tests with whatever they could get from a needle biopsy. I thought the argument that the illness is gone only from the spots where the tumors were removed surgically, should warrant the removal of at least one more, but he didn't buy it. He still wants me on a clinical trial instead of another round of chemo, we'll talk more as the summer winds down.
For now it's explore Minnesota time. I'd like to take the girls camping (once), but since neither Joe or I are campers, we'll have to see if that actually gets done. I'm sure there will be adventures, both in the backyard and upstate. Here's hoping that everyone has a fabulous, safe, summer!
Tuesday, June 2, 2009
It's June!!
Jenna now has braces! Looks like a lot of metal on a little kid. She almost, yes almost, couldn't eat her chocolate cake last night. I'm sure it hurts, but she seems to manage for chocolate! Dr. visit today. We need to ask about delaying chemo for the summer, trying the company that tests chemos against your tumor, and get a better idea of the results of the last scan. There was a spot on my right hip which I assumed was the old spot, but the old spot is on the left hip. Joe said something after the appt, but I poo pooed him. Now I have to 'fess up and tell him he was right. HATE THAT!
Things are still going so well. I still can't believe my diagnosis compared to how I feel. I have never been so peaceful, calm and grateful for everything in my life. How do you compare that to the crap eating my bones? Since the trip out West is probably off for the summer, I would like to take the family to some of the state parks in MN. It would be fun to see a couple waterfalls, the headwaters of the Mississippi, the North Shore with the kids, and a couple museums for me. All scheduled around playdates, cabin trips and ortho appointments.
FYI, last week I made a yummy quiche with spinach. It was homemade (it was the first time I didn't pour it out of a box), and I dumped upside down in the oven 1/2 way through the baking time. Joe ended up cleaning it the next day since he is more anal, I mean detailed than I am. Bummer. We went out to eat instead and the rest of the weekend the kids would say that Dad should cook instead of me so that nothing got dropped. Since that was the first time destroying the meal and the oven, I refuse to listen. We're going to try and have quiche again tomorrow!
Things are still going so well. I still can't believe my diagnosis compared to how I feel. I have never been so peaceful, calm and grateful for everything in my life. How do you compare that to the crap eating my bones? Since the trip out West is probably off for the summer, I would like to take the family to some of the state parks in MN. It would be fun to see a couple waterfalls, the headwaters of the Mississippi, the North Shore with the kids, and a couple museums for me. All scheduled around playdates, cabin trips and ortho appointments.
FYI, last week I made a yummy quiche with spinach. It was homemade (it was the first time I didn't pour it out of a box), and I dumped upside down in the oven 1/2 way through the baking time. Joe ended up cleaning it the next day since he is more anal, I mean detailed than I am. Bummer. We went out to eat instead and the rest of the weekend the kids would say that Dad should cook instead of me so that nothing got dropped. Since that was the first time destroying the meal and the oven, I refuse to listen. We're going to try and have quiche again tomorrow!
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