Friday, June 4, 2010

"probably" disease free

This will be my last post! Our most recent trip to Mayo was last week. I had a scan and blood work on Thurs and Dr. visit on Friday. After chatting with the Doc for a 1/2 hour we got out of him that I am "probably" disease free at this point (just like most men- very noncommittal)!!! He won't call me "cured" for awhile yet, but we're running with disease free for now. The bone has grown back where most of the tumors were (the spine seems to be going a bit slower), and we also talked about getting the plate out of my leg. Doc pulled up the picture of it on the computer, did a small chuckle and said that it is a pretty substantial piece of hardware and he doesn't think an orthopedic doc would want to take it out, but I was welcome to try. I might wait until he calls me "cured" before we go down that route.

Thanks to all of you who came on this journey with me. I have many new friends and old ones that helped me in too many ways to count. I learned that I'm horrible in expressing my love for family and friends, but I do love all of you and want you to know that I could NOT have done this without all the kind words, prayers and good energy. Much less the babysitting, meals, treats, house cleaning, etc...etc...

All my love,
Liz

Wednesday, January 13, 2010

As good as it gets

There was another scan last week. Things are looking good! Or rather they are looking the same as the Oct scan. I thought we were supposed to be looking for improvement (I know, kinda crazy), but Doc said that it might be "as good as it gets". The bone has grown back on the smaller tumors and the larger ones on the spine show calcification. The bone may not grow back on the spine, but since there is calcification that shows progress and the cancer isn't still chomping away on me bones. Arghhh. Doc said it was good news. So I asked for the next scan to be in 6 months and got a big NO CAN DO. So we compromised and are going out 4 months with the caveat of letting him know if I start to feel like crap. We also asked about getting a PET scan next time and he much prefers the CT. The PET would show cancer activity, but you also get other junk in there (like the time they saw the spots on my lungs and it was just a cold - or when my whole tongue lit up and I thought I had mouth cancer....) so apparently my Doc doesn't like having to deal with people freaking out in his office for no reason. When Doc asked about the leg, I started whining about getting the plate out when the cancer was gone; he agreed to let me know when he is comfortable with that, but it's going to be awhile. Fine.

So what to do with the blog.....By not writing all the time I'm saving you from this:

Cereal for breakfast today, couple of celery sticks and a big green smoothie for lunch. Great day!

Or this:

Brrrr was it cold out. Even the dog didn't want to go outside today.


Or this:

Can you believe the price of organic foods??? What's a girl to eat?

SO. I'm tempted to pull up stake and mosey out of this medium. Haven't decided for sure yet. But I'll let you know if there is never going to be another posting - just so the two of you still reading don't waste your time :)

Ciao